Beyond At This Point.

[dodger_sister]

You guys, I am ass-to-the-ground tired, but I haven't posted yet this month, so I am going to commit a cardinal sin and copy/paste some stuff from my Tumblr and from a comment section with a good friend, to explain where I have been and what has been going on.


This bit here...-....The first week of the month has been a bitch and a half. Mom was suppose to go home to her house on Thursday, but instead Halloween night, around 3am, she went to ER by ambulance from the rehab. Sodium levels had dropped dangerously low and they couldn't get back up - from the heart stuff. Finally did, and released her back to rehab for a few more weeks, but in the meantime, she needs $2000 a day (nope, not a typo, it's 1k a pill, 2x a day) for helping to keep her sodium absorbing properly, cuz her insurance won't cover it. I am trying to find a way to get her the pills, also working on a stack of medical bills, a spend down on her Medicaid/Medicare she didn't know she had, and a year's worth of unopened mail we found shoved in her file cabinet. Taking care of my mother has become a full time job...-...

And then there's this...-...If your sodium level drops low enough, you can have seizures or, you know, die. Today we found out that the pill my mother needs to take in order to absorb her sodium pill properly, and thus keep her sodium levels up to a non-dying level, costs $1,000. Per pill. And she has to take it twice a day.

To put it another way - it will cost $2,000 a day to keep her alive. $14,000 a week to keep her alive. $60,000 a month to keep her alive. $730,000 a year to keep her alive.

And her health insurance will not pay for it.

She was just released from the hospital after nearly crashing completely on her sodium levels - causing her severe confusion and hallucinations. She is stable now, but without the medicine, she will be right back in the hospital in no time. And, eventually, it will kill her...-...

I am so tired. I just want some time to write again. I have ideas. But instead, here I am working almost 20 hours a week - on top of, you know, being chronically ill - on my mother's snafu-of-shit that (aside from the health stuff) she basically caused herself by, idk, Not Ever Opening Her Mail.

Comments

[vikingprincess]

It all just sucks so freaking hard. *HUGS*

[dodger-sister.livejournal.com]

So, Mom update: She has been back n forth and back n forth from the hospital to the medical care unit to the rehab and back around again, for the last few months. Congestive heart failure, which is manageable and livable, but they can't find a medicine balance that works for her. She also won't exercise and eat the way she should and she swings from upbeat to depressed on any given day (at least I understand that, after six months of this shit, I'd be surprised if she went any other way).

She has like 10 days left in rehab, completely, not for this stay, but like after all this time. Now she can't go back in rehab unless she stays out of all medical facilities for 60 days, including hospital stays (which won't happen, lol). If she stays out of the hospital/has no major medical issues before next weekend, then she will she go home to my aunts house and after like a month there, she'll go home to her house. (She is NOT taking my dog back! I tell myself she'll never get that far along to a place where she can take him, but I will fight her, arm wrestle the old lady or something!).

She's just never gonna get any quality of life if she doesn't fight for it and she seems unwilling and almost like she likes being sick, so....yeah. There, quick update for you. We just hit the six months of her fall/shattered shoulder/heart attack and this shit is still going strong.

[vikingprincess]

Oh, ugh! Those choices are bad for her, but they're also bad for everyone who cares about her. It makes more work and more stress for everyone if she won't try to make smart choices consistently. :(

Oh the other hand... dog. (yeah, trying to be a little silly for you, but... dog!)