One Step Forward.
Oct. 10th, 2015 02:44 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
I just realized that it is October 10th and I haven't posted yet this month. It's not because I don't have things to say! Or because I don't have the energy to say them! It's just that my energy is getting sapped by other things, mostly Mom-stress.
I will say, I saw the pain doctor that my little brother sees for his fibromyalgia - and that he swears by - and she was A-mazing. She really listened to me and came up with a game plan and if that game plan didn't work, she came up with a backup game plan. One thing was to try a new medicine. She gave me the 'test' for fibro, after I described my pain in a way that was reminscent of her fibro patients. The 'test' is basically just pushing on various pressure points for your nerves and seeing how you react. I reacted in pain with every single pressure point. Because of my arthritis, they can't really accurately diagnose me with fibromyalgia, but that's okay, because they are going to treat it as if it is and started me on a medicine for fibro - (also that my brother takes and swears by). If you could marry a medicine, I'd marry this one. My arthritis pain is still here, obvs, but that all over 'buzzing electricity' pain is like 85% gone and my energy is way up.
We ran errands last Friday to like the bank, the store, to visit mom, to the pet store with the dog - and it was ridiculous, but I was having such a good time, because I felt good. Just running errands is such a novel idea to me these days, like doing more than one thing in a day, let alone in a row. And we were joking and laughing and being silly while we were doing it, just Sis and I enjoying each other - though we were super sad that BFF couldn't come down cuz she was sick, we lamented it all night, no, really - and idk, it just felt weird to be that energized, even though I was exhausted and hurting afterwards, it was a hundred times better than I have been in a long time.
Mom is not doing well, but we'll touch on that some other day and hopefully there'll be more time next post to talk about The Nephew! But anyways, there's the health update I've been promising you - awesome new doctor and awesome new meds!
I will say, I saw the pain doctor that my little brother sees for his fibromyalgia - and that he swears by - and she was A-mazing. She really listened to me and came up with a game plan and if that game plan didn't work, she came up with a backup game plan. One thing was to try a new medicine. She gave me the 'test' for fibro, after I described my pain in a way that was reminscent of her fibro patients. The 'test' is basically just pushing on various pressure points for your nerves and seeing how you react. I reacted in pain with every single pressure point. Because of my arthritis, they can't really accurately diagnose me with fibromyalgia, but that's okay, because they are going to treat it as if it is and started me on a medicine for fibro - (also that my brother takes and swears by). If you could marry a medicine, I'd marry this one. My arthritis pain is still here, obvs, but that all over 'buzzing electricity' pain is like 85% gone and my energy is way up.
We ran errands last Friday to like the bank, the store, to visit mom, to the pet store with the dog - and it was ridiculous, but I was having such a good time, because I felt good. Just running errands is such a novel idea to me these days, like doing more than one thing in a day, let alone in a row. And we were joking and laughing and being silly while we were doing it, just Sis and I enjoying each other - though we were super sad that BFF couldn't come down cuz she was sick, we lamented it all night, no, really - and idk, it just felt weird to be that energized, even though I was exhausted and hurting afterwards, it was a hundred times better than I have been in a long time.
Mom is not doing well, but we'll touch on that some other day and hopefully there'll be more time next post to talk about The Nephew! But anyways, there's the health update I've been promising you - awesome new doctor and awesome new meds!
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Date: 2015-10-10 06:57 pm (UTC)no subject
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Date: 2015-10-10 09:33 pm (UTC)I guess Mom must be doing about the same, huh? :(
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Date: 2015-10-18 10:07 pm (UTC)Mom is worse than when we discussed her last. She has degressed enough that they are talking of moving her from the rehab ward to the nursing home center. She had a chest cold that laid her out for like 4 days and she never came back from it. IDK, the last few days she has seemed a little more active, but her mind is still...bordering on dementia, I guess.
Sis and I are attending a meeting with the social worker on Tuesday and I'll know more then about what's next. I'll keep you informed. Thanks for the support, babe! Idk what I'd do without you to vent too.
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Date: 2015-10-18 10:26 pm (UTC)Oh, man. That's rough. Probably the more active she is, the more her mind has to do, but... both of my maternal grandparents ended up with Alzheimer's, and it's hard to handle for the rest of the family, more so than for the afflicted person.
I hope there are good possibilities for care without losing too much quality of life. It sounds as though coming home might not be in the cards for quite a while. *hugs*
Anytime, babe!
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Date: 2015-10-18 10:37 pm (UTC)no subject
Date: 2015-10-18 10:53 pm (UTC)That's good, that she was receptive to it.
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Date: 2015-10-11 09:20 am (UTC)no subject
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Date: 2015-10-11 05:22 pm (UTC)I'm so glad the pain doctor was so good. I can really feel a difference even over the internet. Your upped energy level is coming through, somehow! I'm so happy for you! <3
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Date: 2015-10-18 10:14 pm (UTC)I can really feel a difference even over the internet. Your upped energy level is coming through, somehow
That makes me so happy to hear. I was just so happy to report on my change in health to you guys! Honestly, I will start a daydream about some hottie or another and suddenly I'll be explaining to them in the daydream how great my new medicine is working and then I'm like, 'no, damn, we were suppose to be making out, this is not what I wanted from this daydream!' But I just am so excited about the new med that apparently I have to tell EVERYONE, even daydream peeps. ;) (that is so embarrassing, omg, I'm such a dork)
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Date: 2016-05-15 05:38 pm (UTC)The best dork! Dorks are the best!
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Date: 2015-10-14 03:36 pm (UTC)no subject
Date: 2015-10-18 10:15 pm (UTC)How are you? How is the situation with your sister going?
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Date: 2015-10-19 03:36 pm (UTC)Only in Slovakia would the police ask you to bring in the guy who tried to kill you with yourself for questioning (I really wish I was kidding).
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Date: 2015-10-25 10:53 pm (UTC)Holy crap. That's...idk what to say. It sounds like they don't take domestic violence serious in any way. I am so sorry, babe.
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Date: 2015-10-25 11:07 pm (UTC)